ibs tales hope awards
The IBS Tales Hope Awards 2007 are currently being presented to websites that offer positive support and encouragement to anyone suffering from a chronic medical problem. In particular, the awards recognise websites that:
- offer accurate information and resources for patients
- encourage sufferers to search for new treatments and hope
- refuse to accept inadequate medical advice or doctors who tell us to
"learn to live with it"!
The awards were created because of demand from visitors to our own website, IBS Tales. Many visitors want to recommend websites that they have found very useful when dealing with any of the medical conditions that they suffer from.
We therefore decided to set up the Hope Awards to reward websites that support people through all kinds of different illnesses and long-term medical issues.
how to display the award
To display the Hope Award on your site, simply add the following code to your web page:
Code for the big logo:
<a href="http://www.ibstales.com"><img src="http://www.ibstales.com/images/hopeaward.jpg" alt="IBS Hope Award"></a>
Code for the small logo:
<a href="http://www.ibstales.com"><img src="http://www.ibstales.com/images/hopeawardsmall.jpg" alt="IBS Hope Award"></a>
Or, if you prefer, just right-click one of the logos, choose "Save target as", upload it to your site, and then link it to http://www.ibstales.com or the Hope Awards page: http://www.ibstales.com/hope-awards.htm.
If you have any problems displaying the award please do get in touch.
further nominations
If you have any other suggestions for websites that might qualify for the IBS Tales Hope Award please get in touch. Sites should be easy to navigate, with good and original content - but most of all they should offer positive support and encouragement for people who are suffering.
When you are nominating a site please include the URL (web address) of the site and a brief (no more than 100 words) description of why the site is worthwhile.
current award holders
The awards are currently being judged and awarded. Winners so far include:
Allergies
Food Allergies Survivors Together (FAST): www.angelfire.com/mi/FAST
An online support group for people with food allergies in the family,
friends of those with food allergies, and individuals with food allergies.
Allergizer: www.allergizer.com
Don't let yourself be backed down by allergies.
Please Don't Pass the Nuts: http://allergicgirl.blogspot.com
A guide to living and eating fish-free, tree-nut-free, gluten-free,
soy-free, and sugar-free in NYC. And beyond.
Antiphospholipid Antibody Syndrome
APS Foundation of America: www.apsfa.org
Support and information for people with APS, which is also known as
Hughes Syndrome or Sticky Blood.
Anxiety and Phobias
National Phobics' Society: www.phobics-society.org.uk
The anxiety disorders charity - a user-led organisation which believes
firmly that those who have personal experience of anxiety are often
best-placed to support others similarly affected.
Anxiety, Addiction and Depression Treatments:
http://www.treatmentonline.com/treatments.php
Reporting and commenting on the most important news in medication,
treatment, psychotherapy, clinical research and other areas of mental
health.
Anxiety Insights: http://www.anxietyinsights.info
News and information on anxiety and related conditions.
Anxious Living: www.anxiousliving.com
An exploration into social anxiety.
Back pain
Spine Health: www.spine-health.com
Spine-health.com empowers individuals to take control of their pain by
providing premium quality doctor-approved articles and videos, patient
forums that are so active they're almost chat rooms, a doctor directory, and
more.
Celiac Disease and Gluten-free Living
Clan Thompson's Celiac Site: www.clanthompson.com/index.php3
Providing news and support for the celiac community.
Gluten A Go-Go: http://glutenagogo.blogspot.com
Gluten-free eating and gluten-free cooking.
Gluten-free Bay: http://glutenfreebay.blogspot.com
Cooking, eating and thriving without gluten.
Karina's Kitchen - Recipes from a Gluten-free Goddess:
http://glutenfreegoddess.blogspot.com
Smart ways to live gluten-free, including loads of great recipes.
Chronic Fatigue Syndrome/ME
FM-CFS Canada: www.fm-cfs.ca
FM-CFS Canada (formerly known as Compassion in Action) is dedicated to
advancing Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) education,
research and treatment.
The National CFIDS Foundation: www.ncf-net.org
Funding research to find a cause, expedite treatments and eventually a cure,
as well as providing information, education, and support to people who have
CFIDS.
National ME/FM Action Network: www.mefmaction.net
Information and support network for myalgic encephalomyelitis, chronic
fatigue syndrome, and fibromyalgia.
CFIDS and Fibromyalgia Self-Help: www.cfidsselfhelp.org
Practical tools for managing chronic fatigue syndrome and fibromyalgia.
Wisconsin Chronic Fatigue Syndrome Association: www.wicfs-me.org
Serving those with myalgic encephalomyelitis (ME) and chronic fatigue
syndrome (CFS).
Counseling
Online Counseling with Licensed Internet Counselors:
www.asktheinternettherapist.com
Description: Online Counseling for family, individuals and groups by
experienced, licensed counselors for mental health and other health issues.
Chat, email, video and phone counseling. Hypnosis tapes, hypnosis CDs,
mental health educational videos, mental health DVDs, and self-improvement
books by Jef Gazley.
Cyclic Vomiting Syndrome
Cyclic Vomiting Syndrome Association: www.cvsaonline.org
The CVSA raises awareness and provides education and support to those
affected by cyclic vomiting, abdominal migraine and related disorders while
advocating for and funding research.
Depression
Online PPD Support Group: www.ppdsupportpage.com
Support for women suffering from post-partum depression.
Diabetes
Diabetes New Zealand: www.diabetes.org.nz
The first port of call for New Zealanders with diabetes, those at risk and
their families.
Diabetties: www.diabetties.org
This site is dedicated to all the "Betties" of the world who have diabetes
and who are strong enough to keep it from hindering their active lifestyles.
Six Until Me: www.sixuntilme.com
Diabetes doesn't define me, but it helps explain me.
Lemonade Life: www.lemonade-life.com
Living with type 1 diabetes - when life hands you lemons, make lemonade!
Disability
International Center for Disability Resources on the Internet:
www.icdri.org
International organization with a huge amount of information on
disability and accessibility issues.
Ultimate Disability Guide: www.ultimatedisabilityguide.com
Help for people who are contemplating applying for Social Security
Disability or Supplemental Security Income and for people who have already
applied for disability benefits.
Dystonia
Care4Dystonia: http://care4dystonia.org
Dedicated to improving patient care, creating awareness of dystonia,
collaborating with other nonprofits and biopharma companies and educating
the dystonia community and public at large about the diagnosis and treatment
of dystonia.
Eating Disorders
ANRED: www.anred.com
Information and resources on anorexia nervosa, bulimia nervosa, binge eating
disorder and other less well-known eating disorders.
Eating Disorders: www.mirror-mirror.org/eatdis.htm
Dedicated to raising awareness and providing information on eating
disorders. Definitions, signs and symptoms, getting help, relapse warning
signs, approaching a loved one, and more.
Endometriosis
Endometriosis Research Center: www.endocenter.org
Dedicated to research, awareness, education and support for
endometriosis sufferers.
Endometriosis in the UK: www.endometriosis.org.uk
The idea behind this site is to bring together women suffering from
endometriosis and to offer free support to endometriosis sufferers and their
partners.
Endometriosis.org: www.endometriosis.org
The global forum for up to date news and information on endometriosis with
links to support groups across the world.
Fibromyalgia
National Fibromyalgia Association: www.nfra.net
Dedicated to education, treatment and finding a cure for fibromyalgia.
Fibromyalgia Information: http://fibromyalgia.ncf.ca
A wide range of articles, news and support resources make this site very
useful to any sufferers.
Fibrohugs: www.fibrohugs.com
The mission of Fibrohugs is to offer a place where people with fibromyalgia
can find understanding, knowledge, and support in their daily battle with
this painful disease.
Friends with Fibro: www.friendswithfibro.org
Support for fibro and chronic fatigue syndrome sufferers - come sit,
listen and enjoy the company of others who understand.
Living with Fibromyalgia: www.livingwithfm.com
A documentary about what it really means to live with fibromyalgia. An
honest, hopeful and highly practical resource for fibromyalgia patients and
their families.
Fibromyalgia Support Northern Ireland: www.fmsni.org.uk
A very comprehensive and useful site supporting fibromyalgia sufferers
in Northern Ireland.
Nottingham and East Midlands Fibromyalgia Support Group:
www.fibrofocus.org.uk
Fibromyalgia support for people in the Nottingham region.
Fibromyalgia Support Group for Surrey and Sussex: www.fms-sas.co.uk
This website provides information about the Fibromyalgia Support Group
for Surrey and Sussex and also offers links to many other sites offering
related information.
National Fibromyalgia Partnership: www.fmpartnership.org
The National Fibromyalgia Partnership offers high quality,
medically-accurate information on fibromyalgia (FM) symptoms, diagnosis,
treatment, and research.
General
InfoMIN: www2.rpa.net/~lrandall/index.html
Medical Information Network for chronic pain, CFS, FMS and other medical
conditions.
National Invisible Chronic Illness Awareness Week:
www.invisibleillness.com
Living with invisible illness is a rollercoaster - help a friend hold on!
Keep Working Girlfriend: www.keepworkinggirlfriend.com
Musings and inspirations from two women, coaches, who live and work with
chronic illness. And are passionate to help others do so, too!
But You Don't Look Sick: www.butyoudontlooksick.com
But You Don't Look Sick magazine is about living life to the fullest
with any disability, invisible disease, or chronic pain and hopes to provide
answers to the endless questions of: But you don't look sick?
A Gaggle of Girls: www.ourgaggleofgirls.com/agog
A blog about life with various chronic illnesses, including fibromyalgia,
lyme disease, celiac disease and food allergies.
Dr Donnica: www.drdonnica.com
The first name in women's health.
Grave's Disease
Elaine Moore's Grave Disease Education Site: www.elaine-moore.com/gravesdisease/index.htm
Elaine Moore's personal website, which is intended for the support and
education of patients with Graves' Disease and other autoimmune thyroid
disorders.
Incontinence
The Simon Foundation for Continence: www.simonfoundation.org
Dedicated to bringing the topic of incontinence out of the closet,
removing the stigma surrounding it, and providing help and hope for people
with incontinence, their families, and the health professionals who provide
their care.
Interstitial Cystitis
Interstitial Cystitis Network: www.ic-network.com
Practical information to improve your bladder discomfort.
Irritable Bowel Syndrome
IBS Self-help Group: www.ibsgroup.org
The largest IBS community on the internet with forums covering all aspects
of IBS.
Irritable Bowel.Net: www.irritable-bowel.net
Books on IBS by Dr Barbara Bradley Bolen, including IBS Chat and Breaking
the Bonds of IBS.
Lyme Disease
Lyme Disease Network: www.lymenet.org
A non-profit foundation dedicated to public education of the prevention and
treatment of Lyme Disease and other tick-borne illnesses.
Men's Health
Andrology: www.andrology.com
Information on a range of men's health problems, including infertility and
impotence.
Migraines and Cluster Headaches
Somebody Heal Me: http://somebodyhealme.dianalee.net
The musings of a chronic migraineur.
The Daily Headache: www.thedailyheadache.com
A candid look at managing and living with headaches and migraines.
Cluster Busters: www.clusterbusters.com
The ClusterBusters are a small, international group of cluster headache
sufferers actively investigating the use of indole-ring hallucinogens to
treat their disease.
Weathering Migraine Storms:
http://deborah-weatheringmigrainestorms.blogspot.com
Have fun with the Queen-Bee while she tries, mostly unsuccessfully, to
master Migraines, Marriage, Motherhood and a myriad of other things
possible.
Multiple Chemical Sensitivity
MCS Homepage: http://www.nettally.com/prusty/mcs.htm
Information and support for people suffering from multiple chemical
sensitivity.
Pain
National Pain Foundation: www.nationalpainfoundation.org
An online educational and support community for persons in pain, their
families and physicians. Your source for treatment options and pain
information that is peer reviewed by leading pain specialists.
American Pain Foundation: www.painfoundation.org
APF strives to improve the quality of life of people with pain by raising
public awareness, providing practical information, promoting research, and
advocating to remove barriers and increase access to effective pain
management.
Pain Treatment Topics: http://pain-topics.org
The mission of Pain Treatment Topics is to serve as a non-commercial
resource for healthcare professionals and patients, providing clinical news,
information, research, and education for a better understanding of
evidence-based pain-management practices. Access is free; no registration
required.
Paruresis
International Paruresis Association: www.paruresis.org
A resource for people who find it difficult or impossible to urinate in the
presence of others, either in their own home or in public facilities.
Reflux
Living with Reflux: www.livingwithreflux.org
The UK support group for gastroesophageal reflux and associated conditions,
offering support and information to families dealing with and living with
infant and adult acid reflux.
Self-help
Self-help Magazine: www.selfhelpmagazine.com
One of the world's first mental health websites, with articles, discussion
forums, meditation information and many more resources.
Sleep Apnea
American Sleep Apnea Association: www.sleepapnea.org
The ASAA is a non-profit organization dedicated to reducing injury,
disability, and death from sleep apnea and to enhancing the well-being of
those affected by this common disorder.
Spondyloarthropathies
Reiter's Information and Support Group: www.risg.org
Information and support for Spondyloarthropathies sufferers, including
information about Reiter's Syndrome, ankylosing spondylitis, and psoriatic
arthritis.
TemporoMandibular Joint Disorder
Jaw Joints and Allied Musculo-Skeletal Disorders Foundation:
www.tmjoints.org
Self-help, education, support and prevention for people with TMJD and
associated disorders.
Tinnitus
Tinnitus and Hyperacusis Center: http://www.tinnitus-pjj.com
Information on tinnitus, hyperacusis, and tinnitus retraining therapy (TRT).
Vulvodynia
Vulvodynia Support: www.vulvodyniasupport.com
A support site and blog for women suffering from vulvodynia.
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